1
31st Annual Conference
Mark Starford Molly Kennedy
mark@brcenter.org molly@brcenter.org
2
Mark Starford Molly Kennedy
mark@brcenter.org molly@brcenter.org
Board Resource Center
The SCILS Group
Head of School
In...
3
Project Hope Website
Tools for people with I/DD and their care
givers who need resources to help
prevent psychiatric eme...
4
Background
California Mental Health Services Act
Department of Mental Health
Department of Developmental Disabilities
Fu...
National Core Indicators Adult Consumer Survey 2011–12 Final Report (2013).
Retrieved from www.nationalcoreindicators.org
...
California DDS Consumers
6
Dual diagnoses
Approximately 13% diagnosed with dual diagnoses
JoEllen Fletcher, Health Develop...
7
Background
Purpose:
Strategies to avoid mental health emergencies and
hospitalizations.
Project Hope Activities:
Therapy...
8
Background
Identified users of Project Hope
• Care givers (family & paid support)
Education level
Priorities:
Crisis
Fru...
9
Health literacy
Ability to obtain, process, and understand basic
health information to make “informed“ decisions.
2013 S...
10
Health literacy
U.S. Department of Education, Institute of Education Sciences, 2003 National Assessment of Adult Litera...
11
Health literacy
Empowerment and engagement among low-income Californians: Enhancing patient-centered care. 2012 Blue Sh...
12
Molly’s story
• Observe learn signs and symptoms
• Document write down what is observed
• Communicate reach out to trus...
13
Developing Project Hope
Focus groups
End users participate as advisors
people with I/DD
group home providers
family mem...
14
The stigma
Don’t isolate.
Reluctant to tell anyone
Difficult to accept
Don't equate yourself with your illness.
I am no...
15
Introduction Video
Introduction
Watch video
View video
Observing
16
Watch video
17
View video
Watch video
Online forms
18
19
Project Hope Focus Group and Community Survey 2013
easWhat we learned
Easy to navigate One click
Easy to read
Use few w...
Abuse – a silent epidemic!
20
Educate and Empower
Learn about
• What abuse is
• How to report abuse
• Where to get support...
Abuse happens
21
4 out of 10
people experience some type of abuse
Abuse happens
22
Abusers know their victims
- People who have regular contact with victim
Sexually abused females are
neve...
Abuse: advocates speak out
23
YouTube
JFK comment to Congress
24
“We as a Nation have long neglected
the mentally ill and the ‘intellectually
disabled’.
“This n...
Contact Information
http://projecthopeca.com 25
Mark Starford mark@brcenter.org
Molly Kennedy molly@brcenter.org
info@proj...
of 25

Project Hope - NADD 2014 Conference Presentation

Project Hope offers a website that provides tools for people with intellectual and developmental disabilities and their caregivers who need resources to prevent psychiatric emergencies. http://projecthopeca.com/ Project Hope is funded by the Mental Health Service Act (MHSA) in partnership with the California Department of Mental Health and Department of Developmeal Services.
Published on: Mar 3, 2016
Published in: Education      
Source: www.slideshare.net


Transcripts - Project Hope - NADD 2014 Conference Presentation

  • 1. 1 31st Annual Conference Mark Starford Molly Kennedy mark@brcenter.org molly@brcenter.org
  • 2. 2 Mark Starford Molly Kennedy mark@brcenter.org molly@brcenter.org Board Resource Center The SCILS Group Head of School Inclusion Teacher Board Resource Center Advisor Chair, CA State Council Advocacy Consultant
  • 3. 3 Project Hope Website Tools for people with I/DD and their care givers who need resources to help prevent psychiatric emergencies. Background Significance Health literacy Project Components
  • 4. 4 Background California Mental Health Services Act Department of Mental Health Department of Developmental Disabilities Funding: Regional centers develop and oversee innovative projects. Focus on treatment for children, families and adult consumers with mental health diagnoses.
  • 5. National Core Indicators Adult Consumer Survey 2011–12 Final Report (2013). Retrieved from www.nationalcoreindicators.org 5 Background %
  • 6. California DDS Consumers 6 Dual diagnoses Approximately 13% diagnosed with dual diagnoses JoEllen Fletcher, Health Development Section I CA Department of Developmental Services 7th Annual Developmental Disabilities Public Policy Conference 2014
  • 7. 7 Background Purpose: Strategies to avoid mental health emergencies and hospitalizations. Project Hope Activities: Therapy for individuals with history of psychiatric hospitalizations and training for care providers. Project Focus User friendly webpages: Identifying Signs and Symptoms Using the Mental Health System
  • 8. 8 Background Identified users of Project Hope • Care givers (family & paid support) Education level Priorities: Crisis Frustration Proactive • Educators/Advocates
  • 9. 9 Health literacy Ability to obtain, process, and understand basic health information to make “informed“ decisions. 2013 Sutter Health Impacts ability to: • Navigate healthcare system (completing forms, locating providers and services) • Share information with providers • Engage in self-care and disease management
  • 10. 10 Health literacy U.S. Department of Education, Institute of Education Sciences, 2003 National Assessment of Adult Literacy Adult health literacy 1/3 with a graduate degree have proficient skills to effectively manage chronic illness
  • 11. 11 Health literacy Empowerment and engagement among low-income Californians: Enhancing patient-centered care. 2012 Blue Shield of California Foundation Survey. September 2012 Cycle of engagement
  • 12. 12 Molly’s story • Observe learn signs and symptoms • Document write down what is observed • Communicate reach out to trusted people
  • 13. 13 Developing Project Hope Focus groups End users participate as advisors people with I/DD group home providers family members professionals Test all the components
  • 14. 14 The stigma Don’t isolate. Reluctant to tell anyone Difficult to accept Don't equate yourself with your illness. I am not my illness Person first language Get support. Join local advocacy support groups Speak out against stigma. Offer to do presentations Express your opinions at events Advocate for better laws
  • 15. 15 Introduction Video Introduction Watch video
  • 16. View video Observing 16 Watch video
  • 17. 17 View video Watch video
  • 18. Online forms 18
  • 19. 19 Project Hope Focus Group and Community Survey 2013 easWhat we learned Easy to navigate One click Easy to read Use few words - plain and simple Action steps Show me what to do Hear and see examples Show me pictures Just the basics No extra information
  • 20. Abuse – a silent epidemic! 20 Educate and Empower Learn about • What abuse is • How to report abuse • Where to get support • To be empowered! Kecia Weller Molly Kennedy
  • 21. Abuse happens 21 4 out of 10 people experience some type of abuse
  • 22. Abuse happens 22 Abusers know their victims - People who have regular contact with victim Sexually abused females are never reported - Lack of information about who to tell - When reported, 55% not believed 66% 90% Abuse and Neglect of People with Development Disabilities:Dr. D Roof/Esser
  • 23. Abuse: advocates speak out 23 YouTube
  • 24. JFK comment to Congress 24 “We as a Nation have long neglected the mentally ill and the ‘intellectually disabled’. “This neglect must end, if our Nation is to live up to its own standards of compassion and dignity and achieve the maximum use of its manpower.” John F. Kennedy, address to Congress February 5, 1963 1963
  • 25. Contact Information http://projecthopeca.com 25 Mark Starford mark@brcenter.org Molly Kennedy molly@brcenter.org info@projecthopeca.com