Press release template (.doc)
Published on: Mar 4, 2016
Transcripts - Press release template (.doc)
(To save yourself some typing, an electronic version of this template is available
– email events@CdLSusa.org to request it.)
Contact: YOUR NAME AND TELEPHONE
Gail Speers, Events Coordinator
CdLS Foundation, 800-753-2357
Local yard sale supports children with rare genetic syndrome
CITY, STATE – (TODAY’s DATE) – A special yard sale takes place DATE(S) at
LOCATION. The sale is part of the first annual Yard Sale Across America, a nationwide
event benefiting children with Cornelia de Lange Syndrome (CdLS). CdLS is a little-known
genetic syndrome causing a range of medical, physical and cognitive problems and
challenges. IF THERE IS A CHILD WITH CdLS IN YOUR FAMILY OR COMMUNITY,
MENTION THAT CONNECTION HERE.
“This event is a great opportunity for families to do some spring cleaning while
educating their communities about CdLS and raising money for a good cause,” says Liana
Fresher, executive director of the CdLS Foundation, the national organization organizing the
event. “Our goal to have at least one yard sale in every state. The Foundation appreciates the
efforts of volunteers such as the YOUR LAST NAME family who make this event possible
by ‘tagging the day’ for CdLS.”
Anyone interested in donating items to the yard sale can contact YOUR NAME AND
- MORE -
Yard Sale Across America, Cont. Page 2 of 2
What is CdLS?
CdLS is a genetic syndrome that occurs in about 1 in 10,000 births. An estimated 20,000
people in the U.S. have CdLS but remain undiagnosed and/or without support services.
Although individuals with CdLS range from mildly to severely affected, most have
similar physical characteristics: small size, hands and feet; thin eyebrows that meet in the
middle; long eyelashes; upturned nose; and thin, downturned lips. Some individuals have limb
differences, including missing fingers or arms, and partial joining of the toes. Common
medical problems include gastroesophageal reflux, bowel malrotation, hearing loss, and
congenital heart defects.
About the Foundation
Founded in 1981, the Cornelia de Lange Syndrome Foundation is a family support
organization that exists to ensure early and accurate diagnosis of CdLS, promote research into
the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS
make informed decisions throughout their lifetime. For more information, call 800-753-2357
or go to www.CdLSusa.org.